When I started out as a Down Syndrome Advocate over 8+ years ago, I honestly never knew that my advocacy journey would have gotten me to this point. I never could have imagined that I would have a talk show! ⠀⠀⠀⠀⠀⠀⠀⠀⠀ Since starting out on my journey of advocating, speaking and educating others, I have […]
I feel this very way right now. As we are working through my son’s IEP and I am reading progress reports. I am sitting here questioning what if I spent more time encouraging my son to read, what if I spent more time doing math problems with him, what if I spent more time playing […]
On March 6th, my son and I along with other self-advocates and families walked on Capitol Hill to advocate for the human rights of all individuals with Down Syndrome and shared with our state legislators why certain bills were important to us. You can find out more about those legislative bills by visiting the National Down Syndrome […]
I am so excited to share that our family photo was chosen this year to be a part of the National Down Syndrome Society Times Square video that kicks off October, which is Down Syndrome Awareness month. Our photo was selected from more than 2,400 entries, and almost 500 photos were displayed in the heart […]
On our 2nd Facebook Live Show, we have a discussion on why we need to help the IEP team and society as a whole, not look at our children through a Deficit-based lens. The way an IEP is designed and implemented to be meaningful, as well as effective is based on which lens the team members use […]
So excited to share this new collaboration with my friend and parent of an awesome child with Down Syndrome Brian Herndon. We are excited to announce our new Facebook Live Talk Show Down Right Capable Show. This show was created to help change the way others view Down Syndrome, by highlighting their capabilities rather than their disabilities. […]
I am excited to announce that I have been nominated for three, yes three awards: the WEGO Health “Advocating for Another” (which I won last year and am honored to be nominated again this year” Award, Best in Show Instagram, and Best in Show Blog in the 2018 WEGO Health Awards. WEGO Health is a […]
The Garden Foundation was founded by Taylor Gardner out of the love for her sister Lindsey. After seeing a program who failed her sister, she created a place that individuals with disabilities can come and “bloom where they are planted”. Their vision is to enhance the lives of people with disabilities by providing […]
The Runway of Dreams Foundation is a nonprofit that works toward a future of inclusion, acceptance, and opportunity in the fashion industry for people with disabilities. Founded on the basis that clothing is a basic human need, the Runway of Dreams Foundation develops, delivers and supports charitable initiatives to broaden the reach of adaptive clothing […]
More than ever, Patient Leaders and Advocates are taking Instagram by storm and amplifying their voices through InstaStories, Hashtags and compelling photos to tell their stories and share their cause. I was proud to be a part of this panel of amazing advocates, to share how I use the platform to share how I use […]