Tag Archives: down syndrome advocacy

Moving Past the Guilt as A Down Syndrome Mom

I feel this very way right now. As we are working through my son’s IEP and I am reading progress reports. I am sitting here questioning what if I spent more time encouraging my son to read, what if I spent more time doing math problems with him, what if I spent more time playing […]

YEP THERE HE IS WITH CONGRESSMAN KENNEDY​​​​​​​

On March 6th, my son and I along with other self-advocates and families walked on Capitol Hill to advocate for the human rights of all individuals with Down Syndrome and shared with our state legislators why certain bills were important to us. You can find out more about those legislative bills by visiting the National Down Syndrome […]

You Won’t Believe What Happened!

Times Square Picture for NDSS

I am so excited to share that our family photo was chosen this year to be a part of the National Down Syndrome Society Times Square video that kicks off October, which is Down Syndrome Awareness month. Our photo was selected from more than 2,400 entries, and almost 500 photos were displayed in the heart […]

Facebook Live Show #2: “Don’t View Our Kids Through A Deficit Based Lens”

On our 2nd Facebook Live Show, we have a discussion on why we need to help the IEP team and society as a whole, not look at our children through a Deficit-based lens. The way an IEP is designed and implemented to be meaningful, as well as effective is based on which lens the team members use […]

Announcing…..A New Facebook Live Talk Show – Down Right Capable

So excited to share this new collaboration with my friend and parent of an awesome child with Down Syndrome Brian Herndon. We are excited to announce our new Facebook Live Talk Show Down Right Capable Show. This show was created to help change the way others view Down Syndrome, by highlighting their capabilities rather than their disabilities. […]

Marla’s Mentions: The Garden Foundation

    The Garden Foundation was founded by Taylor Gardner out of the love for her sister Lindsey. After seeing a program who failed her sister, she created a place that individuals with disabilities can come and “bloom where they are planted”. Their vision is to enhance the lives of people with disabilities by providing […]

Reflecting Back on 2017

As 2017 comes to a close, I wanted to take a moment to reflect back to all the great things I was able to do, the amazing people I met and how I was able to inspire others.  I say “INSPIRE” because that was my word for 2017, and I feel really good that I […]

Speaking at United Nations for World Down Syndrome Day #WDSD17

As I arrived into NYC, the excitement for tomorrow was building inside me. I was ACCEPTED to speak at the United Nations for the World Down Syndrome Day Conference. I am so honored to be sharing about “Why Your Voice Matters”. Which is the theme of the conference: Theme: #MyVoiceMyCommunity – Enabling people with Down syndrome to […]