Tag Archives: advocacy

Today I Am Scared, But I Choose To Be Brave

๐‚๐จ๐ฎ๐ซ๐š๐ ๐ž ๐ข๐ฌ ๐๐จ๐ข๐ง๐  ๐ญ๐ก๐ข๐ง๐ ๐ฌ ๐ž๐ฏ๐ž๐ง ๐ฐ๐ก๐ž๐ง ๐ฒ๐จ๐ฎ’๐ซ๐ž ๐ฌ๐œ๐š๐ซ๐ž๐! I read this today in the book I am reading “100 Days to Brave” by Annie Downs. Moms I know you are scared, I am too! I am scared when my son heads off to school in the morning. Will he get there safely, will people be […]

Moving Past the Guilt as A Down Syndrome Mom

I feel this very way right now. As we are working through my son’s IEP and I am reading progress reports. I am sitting here questioning what if I spent more time encouraging my son to read, what if I spent more time doing math problems with him, what if I spent more time playing […]

YEP THERE HE IS WITH CONGRESSMAN KENNEDYโ€‹โ€‹โ€‹โ€‹โ€‹โ€‹โ€‹

On March 6th, my son and I along with other self-advocates and families walked onย Capitol Hill to advocate for the human rights of all individuals with Down Syndrome and shared with our state legislatorsย why certain bills were important to us. You can find out more about those legislative bills by visiting the National Down Syndrome […]

So How Bold Are You?

how bold are you

So, ladies, that’s the question…#HowBoldAreYou? I saw this campaign fromย Chico’sย in my O Magazine and I LOVED it. A great marketing campaign has the ability to make you think about how it relates to yourself. For me looking at that hashtag I instantly thought of my advocacy work. For me being BOLD is being vulnerable and […]

Facebook Live Show #2: โ€œDonโ€™t View Our Kids Through A Deficit Based Lensโ€

On our 2nd Facebook Live Show, weย have a discussion on why we need to help the IEP team and society as a whole, not look at our children through a Deficit-based lens.ย The way an IEP is designed and implemented to be meaningful, as well as effective is based on which lens the team members use […]

Marla’s Mentions: Born Just Right

  What an amazing non-profit run by two amazing ladies. A mother/daughter team Jen and Jordan.   Let me tell you a little about what their non-profit is about: Born Just Rightโ€™s mission is to build creative solutions that help kids with differences live a more enjoyable life. We believe giving kids design and STEM […]

Marla’s Mentions: The Garden Foundation

    The Garden Foundation was founded by Taylor Gardner out of the love for her sister Lindsey. After seeing a program who failed her sister, she created a place that individuals with disabilities can come and “bloom where they are planted”. Their vision is to enhance the lives of people with disabilities by providing […]

What Does World Down Syndrome Day Mean To You

  Did you know that World Down Syndrome Day (WDSD) is a global awareness day that has been officially observed by the United Nations since 2012? A day of global celebration and awareness to help educate our society of what Down Syndrome is, hear stories from self-advocates of what it means to have Down syndrome […]

What Does World Down Syndrome Day Mean To You

  Did you know that World Down Syndrome Day (WDSD) is a global awareness day that has been officially observed by the United Nations since 2012? A day of global celebration and awareness to help educate our society of what Down Syndrome is, hear stories from self-advocates of what it means to have Down syndrome […]

Invited to Attend the National Down Syndrome Leadership Summit in DC

As you all know October is Down Syndrome Awareness Month, and what a month it was.ย  From celebrating amazing individuals like my son who are rocking an extra 21st chromosome to advocating for their rights with the National Down Syndrome Society at the first Leadership Summit with over 150 self-advocates like David DeSanctis, actor from […]