Category Archives: Down Syndrome

down syndrome is strength

Sunday I Had The Honor Of….

This past Sunday I had the honor of doing something I love, and that was to speak to other Mamas of children with Down Syndrome at a Women’s Motivational Tea. It was a small, intimate group of women that wanted to be in a room with other Moms who are traveling on the same path […]

Moving Past the Guilt as A Down Syndrome Mom

I feel this very way right now. As we are working through my son’s IEP and I am reading progress reports. I am sitting here questioning what if I spent more time encouraging my son to read, what if I spent more time doing math problems with him, what if I spent more time playing […]

YEP THERE HE IS WITH CONGRESSMAN KENNEDY​​​​​​​

On March 6th, my son and I along with other self-advocates and families walked on Capitol Hill to advocate for the human rights of all individuals with Down Syndrome and shared with our state legislators why certain bills were important to us. You can find out more about those legislative bills by visiting the National Down Syndrome […]

You Won’t Believe What Happened!

Times Square Picture for NDSS

I am so excited to share that our family photo was chosen this year to be a part of the National Down Syndrome Society Times Square video that kicks off October, which is Down Syndrome Awareness month. Our photo was selected from more than 2,400 entries, and almost 500 photos were displayed in the heart […]

Facebook Live Show #2: “Don’t View Our Kids Through A Deficit Based Lens”

On our 2nd Facebook Live Show, we have a discussion on why we need to help the IEP team and society as a whole, not look at our children through a Deficit-based lens. The way an IEP is designed and implemented to be meaningful, as well as effective is based on which lens the team members use […]

Announcing…..A New Facebook Live Talk Show – Down Right Capable

So excited to share this new collaboration with my friend and parent of an awesome child with Down Syndrome Brian Herndon. We are excited to announce our new Facebook Live Talk Show Down Right Capable Show. This show was created to help change the way others view Down Syndrome, by highlighting their capabilities rather than their disabilities. […]

Need A Favor! Can you Help?

I am excited to announce that I have been nominated for three, yes three awards: the WEGO Health “Advocating for Another” (which I won last year and am honored to be nominated again this year” Award, Best in Show Instagram, and Best in Show Blog in the 2018 WEGO Health Awards. WEGO Health is a […]

Marla’s Mentions: The Garden Foundation

    The Garden Foundation was founded by Taylor Gardner out of the love for her sister Lindsey. After seeing a program who failed her sister, she created a place that individuals with disabilities can come and “bloom where they are planted”. Their vision is to enhance the lives of people with disabilities by providing […]

Patient Leaders and Advocates are taking Instagram by Storm

wego health instagram webinar

More than ever, Patient Leaders and Advocates are taking Instagram by storm and amplifying their voices through InstaStories, Hashtags and compelling photos to tell their stories and share their cause. I was proud to be a part of this panel of amazing advocates, to share how I use the platform to share how I use […]

Marla’s Mentions: Hallie Shermen, Speech Time Fun

So you know you have a great therapist when you watch her sharing all her tips and tricks with other therapists, so they can get the best from their students. Even as a parent I love watching Hallie Sherman from Speech Time Fun (@speechtimefun) whose energy and smile are so contagious. I would personally love […]