Category Archives: advocacy

IEP TIP: Brain Dump Your Concerns

If you have a child that is on an IEP (Individualized Education Plan) I am sure with the new school year starting, your stress levels are at an all time high. With a new school year your child may be dealing with: new teachers new routines and maybe even new students All of these can […]

Today I Am Scared, But I Choose To Be Brave

๐‚๐จ๐ฎ๐ซ๐š๐ ๐ž ๐ข๐ฌ ๐๐จ๐ข๐ง๐  ๐ญ๐ก๐ข๐ง๐ ๐ฌ ๐ž๐ฏ๐ž๐ง ๐ฐ๐ก๐ž๐ง ๐ฒ๐จ๐ฎ’๐ซ๐ž ๐ฌ๐œ๐š๐ซ๐ž๐! I read this today in the book I am reading “100 Days to Brave” by Annie Downs. Moms I know you are scared, I am too! I am scared when my son heads off to school in the morning. Will he get there safely, will people be […]

Sunday I Had The Honor Of….

This past Sunday I had the honor of doing something I love, and that was to speak to other Mamas of children with Down Syndrome at a Women’s Motivational Tea. It was a small, intimate group of women that wanted to be in a room with other Moms who are traveling on the same path […]

Moving Past the Guilt as A Down Syndrome Mom

I feel this very way right now. As we are working through my son’s IEP and I am reading progress reports. I am sitting here questioning what if I spent more time encouraging my son to read, what if I spent more time doing math problems with him, what if I spent more time playing […]

YEP THERE HE IS WITH CONGRESSMAN KENNEDYโ€‹โ€‹โ€‹โ€‹โ€‹โ€‹โ€‹

On March 6th, my son and I along with other self-advocates and families walked onย Capitol Hill to advocate for the human rights of all individuals with Down Syndrome and shared with our state legislatorsย why certain bills were important to us. You can find out more about those legislative bills by visiting the National Down Syndrome […]

You Won’t Believe What Happened!

Times Square Picture for NDSS

I am so excited to share that our family photo was chosen this year to be a part of the National Down Syndrome Society Times Square video that kicks off October, which is Down Syndrome Awareness month. Our photo was selected from more than 2,400 entries, and almost 500 photos were displayed in the heart […]

Facebook Live Show #2: โ€œDonโ€™t View Our Kids Through A Deficit Based Lensโ€

On our 2nd Facebook Live Show, weย have a discussion on why we need to help the IEP team and society as a whole, not look at our children through a Deficit-based lens.ย The way an IEP is designed and implemented to be meaningful, as well as effective is based on which lens the team members use […]

Need A Favor! Can you Help?

I am excited to announce that I have been nominated for three, yes three awards: the WEGO Health “Advocating for Another” (which I won last year and am honored to be nominated again this year” Award, Best in Show Instagram, and Best in Show Blog in the 2018 WEGO Health Awards. WEGO Health is a […]