Category Archives: advocacy

Sunday I Had The Honor Of….

This past Sunday I had the honor of doing something I love, and that was to speak to other Mamas of children with Down Syndrome at a Women’s Motivational Tea. It was a small, intimate group of women that wanted to be in a room with other Moms who are traveling on the same path […]

Moving Past the Guilt as A Down Syndrome Mom

I feel this very way right now. As we are working through my son’s IEP and I am reading progress reports. I am sitting here questioning what if I spent more time encouraging my son to read, what if I spent more time doing math problems with him, what if I spent more time playing […]

YEP THERE HE IS WITH CONGRESSMAN KENNEDY​​​​​​​

On March 6th, my son and I along with other self-advocates and families walked on Capitol Hill to advocate for the human rights of all individuals with Down Syndrome and shared with our state legislators why certain bills were important to us. You can find out more about those legislative bills by visiting the National Down Syndrome […]

You Won’t Believe What Happened!

Times Square Picture for NDSS

I am so excited to share that our family photo was chosen this year to be a part of the National Down Syndrome Society Times Square video that kicks off October, which is Down Syndrome Awareness month. Our photo was selected from more than 2,400 entries, and almost 500 photos were displayed in the heart […]

Facebook Live Show #2: “Don’t View Our Kids Through A Deficit Based Lens”

On our 2nd Facebook Live Show, we have a discussion on why we need to help the IEP team and society as a whole, not look at our children through a Deficit-based lens. The way an IEP is designed and implemented to be meaningful, as well as effective is based on which lens the team members use […]

Need A Favor! Can you Help?

I am excited to announce that I have been nominated for three, yes three awards: the WEGO Health “Advocating for Another” (which I won last year and am honored to be nominated again this year” Award, Best in Show Instagram, and Best in Show Blog in the 2018 WEGO Health Awards. WEGO Health is a […]