Category Archives: Featured Posts

❤ Happy HEART Day! ❤

For the last five days, I have been sharing different posts in a #MiniSeries to help raise awareness for Congenital Heart Defect Awareness Week!   As a mother of a “Heart Hero”, this is a very special week for our family. Our son was diagnosed with Tetralogy of Fallot, I explain about this condition in […]

Congenital Heart Defect Week #MiniSeries – Heart Structure

Congenital heart defects are problems with the heart’s structure that are present at birth. As we continue to celebrate Congenital Heart Defect awareness month. Did you know that congenital heart defects change the normal flow of blood through the heart? Here is a drawing the Pediatric Cardiologist gave to us when he was showing us what exactly […]

Congenital Heart Defect Week #MiniSeries – Some Babies Born With CHD Will Need Surgery

For many forms of CHD, surgery is not a cure. Congenital heart disease is a lifelong condition requiring specialized care, and often additional surgeries and medications are needed later in life. From the CDC: As medical care and treatment have improved, babies and children with CHDs are living longer and healthier lives. Most are now […]

Congenital Heart Defect Week #MiniSeries – Infants Born With CHD

Did you know that approximately half of all infants born with Down syndrome have a heart defect? Many congenital heart defects have no signs or symptoms.  Sometimes a doctor can hear a slight murmur in an infant, sometimes they can’t.  But that doesn’t always mean it’s a heart defect, and usually, murmurs go away as […]

Congenital Heart Defect Week #MiniSeries – Most Common Birth Defect

  Congenital Heart Defects (CHDs) are the most common birth defects in the United States, affecting approximately 1 in every 110 (about 40,000) babies each year. However, early screening is key to an infant’s survival. We were fortunate because we detected Jacob’s heart condition when I was four months pregnant. According to Dr. Matthew Davis, Chief […]

Congenital Heart Defect Week #MiniSeries – Meet My Heart Hero

It’s February and if you are a Mom of a “Heart Hero” you know how important this month is to us. February 7-14 every year, the world celebrates our precious ones with congenital heart defects (CHD). For the next five days, I will share with you my heart hero, my son Jacob! Jacob was born […]

Reflecting Back on 2017

As 2017 comes to a close, I wanted to take a moment to reflect back to all the great things I was able to do, the amazing people I met and how I was able to inspire others.  I say “INSPIRE” because that was my word for 2017, and I feel really good that I […]

Invited to Attend the National Down Syndrome Leadership Summit in DC

As you all know October is Down Syndrome Awareness Month, and what a month it was.  From celebrating amazing individuals like my son who are rocking an extra 21st chromosome to advocating for their rights with the National Down Syndrome Society at the first Leadership Summit with over 150 self-advocates like David DeSanctis, actor from […]

Fun Family Summertime Activities

Summer is finally here, the kids are out of school, the days are long, and the weather is warm. Getting outside as a family is enticing! Maybe you have a fun vacation planned or the kids are going to camp for a few days, but what about the rest of the summer? There are lots […]

It's Here – 31 Days of Gratitude Journal for SpecialMoms

The 31 Days of Gratitude Journal is here! Journaling has truly become so popular. It really is a time for us to relax with a warm cup of tea or a cold glass of wine, and reflect on all the things we are grateful for in our life. Whether it be family, health, a new […]